Internet Leukemia Support Resources

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Internet Leukemia Support Resources
ACOR

There are several major internet lists that provide support for people dealing with Leukemia and related diseases. Patients, caretakers, and medical personnel all interact to answer questions and concerns posted to these lists. Many of the lists below can be subscribed to or unsubscribed to from the Association of Cancer Online Resources (ACOR) web page: the ACOR Interface to the Mailing Lists .

Internet Support Email Lists

Support for Aplastic Anemia and Myleodysplastic Syndromes

Marrowforums

Marrowforums, is a web-based discussion forum for people affected by bone marrow failure diseases, including Aplastic Anemia (AA), Myleodysplastic Syndrome (MDS) and Paroxysmal Nocturnal Hemoglobinuria (PNH). Marrowforums is a replacement for the AA-MDS-TALK listserv that was based on AOL.

MDS-AA

An online e-mail list for Myleodysplastic Syndromes and Aplastic Anemia. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe MDS-AA your first and last name
If you have a signature, delete it.

You can also use the ACOR web interface for the MDS-AA list .

Acute Lymphocytic Leukemia

Online e-mail list for Acute Lymphocytic Leukemia. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe ALL-L your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the ALL-L list.

Also see the ALL Resources page from GrannyBarb and Art's Leukemia Links.

Acute Myeloid Leukemia

Online e-mail list for Acute Myeloid Leukemia. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe AML your first and last name
If you have a signature, delete it.

You can also use the ACOR web interface for the AML list .

Also see the AML Resources page from GrannyBarb and Art's Leukemia Links.


Pediatric Acute Lymphoblastic / Lymphocytic Leukemia

The PED-ALL and ALL-KIDS have now merged into to one list for parents, friends, and family of children with Acute Lymphoblastic / Lymphocytic Leukemia.

ALL-KIDS (formerly ALL_KIDS and PED-ALL)

e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe ALL-KIDSyour first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the ALL-KIDS list.

Leukemia from ACOR's Pediatric Oncology Resources

Bone Marrow Transplant list (BMT-Talk)

E-mail list for those who have had or are facing Bone Marrow Transplants (BMT) or Peripheral Stem Cell Transplants (PSCT or PSCR). To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe bmt-talk your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the BMT-TALK list.

Laurel Simmon's BMT-Talk Homepage .

Alone Together: Cancer Patients and Survivors Find Treatment -- and Support -- Online. It Can Make All the Difference, by Laura Landro (a leukemia and BMT survivor) from the October 19, 1998 edition of the Wall Street Journal. This article is largely about BMT-Talk and is reprinted with the kind permission of the Wall Street Journal.

Cancer

Online e-mail list for all Cancers. To subscribe:
e-mail: listservlistserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe cancer your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the CANCER list.

Chronic Lymphocytic Leukemia

Online e-mail list for Chronic Lymphocytic Leukemia. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe cll your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the CLL list.

Also see the CLL Resources page from GrannyBarb and Art's Leukemia Links.

Chronic Myelogenous Leukemia

Asian CML support Group

To subscribe go to their home page on Yahoo

ACOR's CML list

Online e-mail list for Chronic Myelogenous Leukemia. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe CML your first and last name
If you have a signature, delete it.

You can also use the ACOR web interface for the CML list .
Also see the The CML Resources page from GrannyBarb and Art's Leukemia Links .


Cutaneous T-Cell Lymphoma, Mycosis Fungoides

Online e-mail list for Cutaneous T-Cell Lymphoma, Mycosis Fungoides and related diseases. To subscribe:
e-mail: listserv@home.ease.lsoft.com
subject: none (or add a dash if your mail program requires it)
message: subscribe CTCL-MF your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the CTCL list.


Graft-vs.-Host Disease

Online e-mail list for Graft-vs.-Host Disease. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe GVHD your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the GVHD list.
Also see the

GVHD Resources page from GrannyBarb and Art's Leukemia Links.


Hairy Cell Leukemia

Online e-mail list for Hairy Cell Leukemia. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe HAIRY-CELL your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the HCL list .

Also see the HCL Resources page from GrannyBarb and Art's Leukemia Links.


Hematological Cancers (Hem-Onc)

Online e-mail list for all hematological cancers. HEM-ONC now mostly contains messages with links to articles and abstracts about hematological cancer diagnosis and treatment. See the lists for specific diseases. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe hem-onc your first and last name

If you have a signature, delete it. You can also use the ACOR web interface for the HEM-ONC list.

Hodgkin's Disease

ACOR list for information and support for patients and caregivers and medical professionals with Hodgkin's Disease..

To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe hodgkins your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the Hodgkin's disease list.

Mantle Cell Lymphoma

ACOR list for information and support for patients and caregivers and medical professionals with Mantle Cell Lymphoma.

To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe mantlecellyour first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the Mantle Cell Lymphoma list.

Multiple Myeloma

ACOR list for information and support for patients and caregivers and medical professionals with Multiple Myeloma. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe myelomayour first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the Multiple Myeloma list.

Myeloproliferative Disorders (MPD-Net)

Online e-mail list for Myeloproliferative Disorders including: polycythemia vera, essential thrombocythemia or essential thrombocytosis, agnogenic myeloid metaplasia and/or myeloid metaplasia, myelofibrosis, and/or chronic myelogenous leukemia. To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe mpd-net your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the MPD-NET list.

See also the MPD Homepage, which has information on MPD and links to other MPD Resources.

Non-Hodgkins Lymphoma

ACOR's NHL list

ACOR list for information and support for patients and caregivers and medical professionals with Non Hodgkin's Lymphoma.

To subscribe:
e-mail: listserv@listserv.acor.org
subject: none (or add a dash if your mail program requires it)
message: subscribe nhl your first and last name

If you have a signature, delete it.

You can also use the ACOR web interface for the NHL list.

NHL List

The NHL list is for Non-Hodgkin's lymphoma patients and care givers alike. The purpose is to provide support, caring, information about lymphoma, and living with this disease. Discussions cover the full range of standard treatments, clinical trials, and technological advances in the treatment of NHL. The focus is on modern scientifically based medicine but discussions occasionally include alternative and complementary treatments. To subscribe go to the NHL group page on Yahoo.

Copyright © 2004, 2005 ACOR, Inc.